K – is for Knowledge + patient – resource
How do families and young people use knowledge to manage their health? This is part one of two blogs on knowledge and patients. We now
Tag: Rare Diseases
Our Stripy Baby – review
Written by Gillian Shields and illustrated by Paula MetcalfMacmillan children’s books, 2006. ISBN 1405022108. Our stripy baby, written for young children, is essentially a story
The Australian Experience of Living with a Rare Disease: personal stories – review
Rare Voices Australia, 2014. Rare Voices Australia has recently published, “The Australian Experience of Living with a Rare Disease: personal stories”. This is a personal
