Children In Hospital

Help! My Child’s in Hospital!

by

Help! My Child’s in Hospital: A parent’s survival guide. Practical advice for parents on preparing your child and caring for them in hospital.
By Becky Wauchope ~ Illustrations by Kaitlyn Miller

“Help! My Child’s in Hospital” is a great read if you are looking for something positive to prepare your child and family for hospital. Written in a warm, personal and easy-to-read style, Becky Wauchope describes what it is like to be in hospital and how to cope with anything from an emergency visit to a long stay and repeated visits. Her experiences with son Gus in over three years of repeated visits to hospital, have resulted in a practical and creative book. Lots of tips throughout provide starting points for children and parents to encourage coping and reduce fear. There are ideas to help keep life as normal as possible with play and some fun. The easy to follow ideas are particularly good for families with young children, Becky has many years experience as an early childhood worker. There are great tips and creative ideas to assist children and families with hospital preparation, daily life in hospital, tests and procedures, anaesthesia and surgery, medication, support and recovery.

This is a stressful time, so parents who are time poor can dip into the book and read on a topic, such as “Having an operation” and read about how to prepare and cope with fasting. Reading the book cover to cover is also a great way to gain an overview.

The book emphasises communication for parents, who know their child best, to work with health professionals for the best care. Honest conversation with your child providing the right amount of information is also a positive step. Parents can read about how to be child advocates, there are examples of steps for being prepared when talking with health professionals. Parents are encouraged to know their limits and if not able to help reduce a child’s fear or confusion then they are empowered to ask for help. Parents are a reassuring presence.

Some variations of what you may expect to find in different hospitals are covered. Parents will feel more aware and strengthened by both the information and supportive ideas. “Help! My Child’s in Hospital” highlights why preparing yourself and your child for the hospital experience is so important.

Find checklists at the back, with what to pack including Surprise packs that offer distraction. With cute illustrations, helpful layout and available for a reasonable price, this book would be a great addition to a Kindy library, hospital waiting room or public library. Copies are available for loan from the Association for the Wellbeing of Children in Healthcare (AWCH) Library and can be purchased via Becky’s website.

About the author:
The Wauchope family were about to emigrate to Australia from the UK, when Gus, the youngest of four developed severe breathing problems. This was the beginning of a three year journey through hospital readmissions in the UK and then Australia. Gus is now well and Becky has made numerous speaking engagements, run support groups and encourages people to share their stories. Find her website at: www.helpmychildisinhospital.com

Keywords:  Anaesthesia; Child; Child, Preschool; Communication; Hospital preparation; Hospitalization; Medication; Parent information; Preparation for anaesthesia; Preparation for medical and surgical procedures; Routines; School children

Jillian Rattray
AWCH Librarian
July, 2013

Please Don’t Leave Me

by

Film Australia made this film for the Australian Association for the Welfare of Children as an Australian contribution to the International Year of the Child, 1979. The film was the result of a unique cooperation between Government, hospitals and the community.

Please Don’t Leave Me is a social document truthfully reflecting ‘where we were at’ in Australian children’s hospitals in 1979 – the International Year of the Child. The film is without commentary. At the time, Film Australia and AWCH paid tribute to hospitals whose staff courageously agreed to this exposure of their normal routine. Despite their vulnerability they were willing to go ahead, sharing with the film makers the aim of providing insights to all professionals, parents and policy makers concerned with the care of children.

Uncontrived visual and sound effects speak to the observer at an individual level with a strong emotional impact. It is worth noting that one of the camera men in the production team was Dean Semler of cinematographer fame – Mad Max 2, Dances With Wolves, City Slickers and Bruce Almighty to name a few.

Please Don’t Leave Me shows the reality of a child’s hospital experience in 1979. The result is important and at times uncomfortable. It was an important tool for the achievement of AWCH’s national goal – that each hospitalised child’s overwhelming plea ‘I Want Mummy’ should be understood and answered. It was hoped that through insights gained the necessary provisions would be made both in policy and practice so that hospitalised children could be continually supported by their parents. In the cases where this was not possible, it was necessary to ensure a surrogate parent for each individual child.

In AWCH’s 40th year we celebrate its achievements in the introduction of:

  • increased and flexible visiting hours for parents/carers and siblings of hospitalised children and adolescents
  • parents staying with their child during hospitalisation with appropriate facilities
  • recognition of the importance of play/education for a child/young person’s preparation and recovery while in hospital
  • increased parental involvement in all aspects of a child’s hospital care
  • Introduction of the AWCH Ward Grandparent Scheme

It is worthwhile watching the outstanding film and reflecting on the last 30+ years advances in how children are cared for in hospital.

The DVD can be borrowed from AWCH Library

Prescription for success: supporting children with Autism Spectrum Disorders in the Medical Environment

by


Prescription for success: supporting children with Autism Spectrum Disorders in the Medical Environment

Hudson, Jill
Shawnee Mission, Kan.: Autism Asperger Pub. Co., 2006.

 


Written by a Child Life specialist (Play therapist) from John Hopkins Hospital, this book is essentially aimed at supporting families. It is a communication tool for parents of children with Autism Spectrum Disorder (ASD) to use when visiting health professionals. The book starts with a look at the medical encounter and presents this experience from the child’s point of view. The title “Prescription for success” reflects the focus on preparation both prior to and during the child’s medical encounter.
The motivation for the book is to support children with ASD better, health professionals in hospitals, doctors’ surgeries, dentists, administrative staff and others will be learn more about the children’s needs from this overview. Importantly, the book is engaging because it is written in a friendly, easy-to-read format and includes practical and creative techniques. Chapters cover the Medical encounter; characteristics of children with Autism Spectrum Disorders; developmental levels; assessment; interventions and supports (pp 49-73) and effective implementation of interventions and supports. A large section on interventions and supports will help to bridge knowledge gaps  medical professionals may experience.
Find also appendices with the role of service providers as well additional resources and games to prepare for medical encounters. There is an accompanying CD with forms, activities and games worksheets which can be printed and duplicated. Illustrations are in black and white. More resources of this nature which are both family-centered and helpful for health professionals, would be welcome.
This book is available for loan from the AWCH collection at call number: 618.9285882 HUD 1

 

Book Review written by
Jillian Rattray
AWCH librarian

 

Therapeutic activities for children and teens coping with health issues

by

Therapeutic activities for children and teens coping with health issues
By Robyn Hart and Judy Rollins.
John Wiley & Sons, Hoboken, New Jersey, 2011, 379 p. ISBN 9780470555002.
Bibliography, pp  339-364. Includes CD-ROM.

“Therapeutic activities for children and teens coping with health issues” is a book richly filled with activities to assist health professionals, child life therapists, counsellors and social workers in their work with families. Activities and related information promote adaptation and coping for children, adolescents and their families in hospital or living with health issues. It is great to see so many ideas presented in an easily readable format, with over 200 practical activities to choose from.

Chapters focus on promoting understanding and coping for adolescents and children through different aspects of their healthcare experiences. Topics of the 16 chapters include separation and anxiety, self expression, socialization and help with many aspects of coping with illness. Set out in a clear way, each topic covers an overview, special considerations and coping interventions. The theoretical framework behind each topic is outlined. Activities are set out using an easy-to-read table which includes: therapeutic goals, age group, adult/child ratio, required time, restrictions and precautions and materials. You will also find an extensive bibliography (pp  339-364) as well as black and white illustrations and photographs. The accompanying CD has activity sheets and templates that can be customised.

With a great mix of theory and hands on, this book is sure to be a helpful reference tool and provide both information and inspiration. In fact I think I’ll gather up my supplies and try my hand at making a volcano.

About the authors
Robyn Hart, director of Child Life at Rush University Medical Center in Chicago. Judy Rollins, coordinator of the Studio G Artist in Residence Program at Georgetown University Hospital and Adjunct Professor at Georgetown University School of Medicine. This is the second  book they have worked together on, the previous award winning book is entitled, Therapeutic play activities for hospitalized children.

Keywords: Activities; Adaptation, psychology; Adolescent psychology; Bereavement; Body image; Child life; Child, hospitalised; Child psychology; Culture; Death; Families; Group work; Hospitalization; Medical art; Medical equipment; Mental health; Pain; Patients; Play therapy; Self-esteem; Self-expression; Therapeutic activities; Therapy

Awards
Winner of the American Journal of Nursing Book of the Year 2011
(Category: Maternal And Child Health)

Other titles also by Judy Rollins available for loan from the AWCH collection:
Meeting children’s psychosocial needs: across the health-care continuum / Judy A. Rollins, Rosemary Bolig and Carmel C. Mahan. Austin, Texas: Pro-ed, 2005. xv, 551 p.: Includes bibliographical references and index. Call number: 618.92 ROL 1
Core curriculum for the nursing care of children and their families / Marion E. Broome, Judy A. Rollins, Editors. Pitman, New Jersey: Jannetti Publications Inc., 1999. Call number: 610.7362 BRO 2

Review By:
Jillian Rattray
AWCH Librarian
March, 2013

 

Childlife Awareness Month

by

This month is Childlife Awareness Month. Childlife or Hospital Play has existed in hospitals that care for children since early in the 20th century often starting out as volunteer programs. However in Australia up until the second half of the 20th century and even now in the 21st century play programs are not always available in hospitals that care for children. Play gives children and adolescents the opportunity to express some of their apprehensions arising from the stress of illness. It also provides ‘normal’ everyday activities as a diversion from health care issues.

AWCH recognised the importance of play in hospital from its very early days and held a residential seminar at Armidale on play in hospital in 1976.  A first in Australia, it brought together a wide range of hospital staff, teachers and students in various disciplines and others interested in both the theoretical and practical aspects of play in hospital. It was through this seminar that play workers from a variety of hospitals and institutions and in widely differing positions became aware of each other’s existence and made recommendations for unified guidelines to be established as to their status in the hospital system. Today the Australian Association of Hospital Play Specialists promotes the importance of developmental play activities, therapeutic play, play preparation programs, medical play, diversion and distraction activities, and pre-
admission programs. In April 2013, AAHPS is holding its 7th biennial international conference, Connect and Collaborate A Hospital Wide Approach to Psychosocial Care in Melbourne.

So currently, where are we at with hospital play services in Australia? The AWCH 2005 National Survey Report on the Psychosocial Care of Children and Their Families in Hospital reported on the state of hospital play in Australia. The report found that just under 25% of surveyed hospitals had play or recreation staff and just over half provided a separate play room in or near the ward for child patients. Just a note here that these were all hospitals who provided care for children and young people. Of concern is the fact that just under 15% of those surveyed did not provide any separate play space for child patients.

AWCH made several recommendations:

  • Hospitals admitting paediatric patients should allocate a suitable space for play and recreation activities
  • Hospitals providing care for paediatric patients should employ appropriately qualified staff to conduct play activities, preparation for specific medical tests and procedures, medical play and distraction
  •  Hospitals providing care for paediatric patients should allocate appropriate play space, as recommended by the American Academy of Pediatrics
  • In areas where children are required to wait, suitably qualified play staff and/or suitable play or recreation space should be available to provide developmental, medical and preparation activities

So…are we doing any better in 2013? Does every hospital that cares for children and young people have play and recreation services available? What is the state of ‘play’ at your local hospital?

Anne Cutler
Program Manager AWCH

Book Review: Extraordinary Parenting

by

‘Extraordinary Parenting’  is a helpful manual written for parents who have children with chronic physical or medical conditions. The book is set out in a readable format with clearly presented information. You will find simple illustrations, photographs and a bibliography. In addition, it is written in an Australian context.

Ordinary children are faced with extraordinary circumstances and in the book parents are given psychosocial information to support their children. Topics covered are varied and range from looking at a child’s psychological and emotional world to experiences such as hospitalisation, medication taking, sleep overs and camps or life in the school playground.  Extraordinary parenting encompasses child development stages and age appropriate information for up to early teens. There is an emphasis on raising awareness of what a child and family may be experiencing whilst looking at important emotions such as anxiety, self-perception and depression. Parents are encouraged to focus on their “best intentions” rather being caught up in guilt. Find an abundance of practical information, for example throughout the manual at the end of each chapter, readers will find the heading “Psychological protection : what you can do”.  Children and families can build understanding and develop skills for good self-esteem and resilience.

The author draws on her experience of over 20 years from working children, adolescents and adults in the fields of psychology, social work and literature. Dr Bruce works in private practice at the Emotional Health Centre, Cheltenham, Victoria. Extraordinary parenting can be viewed online in chapter format and/or purchased at: http://www.emotionalhealthcentre.com.au/page.php?id=557

The AWCH library holds two copies and both are available for loan.

Extraordinary parenting : protecting self-esteem and minimising depressive outcomes in pre-adolescent children who have significant medical or physical conditions (Cover title: Extraordinary parenting : a manual for parents of children aged 0-12 with chronic physical or medical conditions). Emotional Health Centre, Cheltenham, VIC. 2007, 168 p.  ISBN 9780980420609.
By Dr Elizabeth J. Bruce PhD, edited by Dr Cynthia L. Schultz, illustrations by Colin Bruce
Subjects:  Chronic diseases in children – Psychological aspects. Chronically ill children – Family relationships.  Chronically ill children – Education. Chronic disease – In infancy & childhood.

 

Review by:
Jillian Rattray
AWCH Librarian

Social Media for Children in Hospital

by

Should children and young people have access to the internet and social media while they are in hospital?

Social support during hospitalisation has always been a critical factor for children and young people. The rights of children and young people in healthcare have been enshrined in polices and standards developed by AWCH and other like minded organisations over many years.

Reducing feelings of isolation from friends and family members, especially for older children and teens is an important consideration. For older children, contact with school friends and access to facilities they may have at home (e.g. the internet) can also help normalise the hospital experience. This is important to reduce the possible negative effects associated with childhood hospitalisation.

The new technologies can provide young patients with increased access to family, peers and entertainment and have been shown to enhance communication and social connection. With internet access, children can also keep up with their school work.

Recent surveys about technology and social media have found that:

It is clear that the internet is a huge part of young lives. Arguably young people who do not have such access may be disadvantaged. Strategies that enable equitable access to the internet for children and young people during hospitalisation have the potential to reduce isolation and interruption to education.

Should access to these important technologies, which enable social connectedness, as well as educational opportunities, be available to all children and young people while they are in hospital?

What do you think?

Advocating for the needs of children, young people and their families within the healthcare system

Quicklinks

Follow Us

Facebook Twitter Instagram Linkedin Pinterest

Contact Us

Association for the Wellbeing of Children in Healthcare (AWCH)

Building 40B
Gladesville Hospital
Cnr Victoria & Punt Roads
Gladesville NSW 2111
Australia

Tel: 02 9817 2439
Email: awch@awch.com.au

Accredited By

AWCH Accreditation logo

Funded By

The Association for the Wellbeing of Children in Healthcare acknowledges Traditional Owners of Country throughout Australia and recognises the continuing connections to lands, water and communities. 

We pay our respects to Aboriginal and Torres Strait Islander cultures; and to elders past and present.

Copyright © 2022 - Association for the Wellbeing of Children in Healthcare - All rights reserved